Together for Short Lives has launched a ground-breaking new funding programme to help address the cliff edge in care experienced by young adults in their transition from children’s to adult services. The programme is funding innovative projects that have the potential to transform the experience of young people with life-limiting conditions as they prepare for and move on to adult services.

Applications for Round Two of the Improving Transitions for Young People Fund will open in March 2018. The Together for Short Lives website will be updated with more details when they are available: http://www.togetherforshortlives.org.uk/transitionawards

The NAHH have sent a succinct report to NICE regarding End of Life Care services which includes citing several examples provided by member services in the last 12 months.

The report is available to download here

The NAHH thanks contributors and welcome any further responses and is aware that some member services will have submitted more detailed evidence on behalf of your Hospice at Home service through their organisation.

The NAHH Trustees are delighted to share the news that a recent article written by Kay Greene and Lesley Spencer, has been published in the European Journal of Palliative Care (EJPC). The article outlines the NAHH strategy and explains who the NAHH is and what our Association’s goals are.

The article can be downloaded here -> 

This document is held under copyright by Hayward Group Ltd, publisher of the European Journal of Palliative Care. It may be downloaded for single academic use only. Reproduction for any other purpose is not allowed. For further information, please contact the editorial team by clicking here.

A new role that will sit alongside existing nursing care support workers and fully-qualified registered nurses to deliver hands-on care moved a step closer today as Health Education England (HEE) published the response to its recent consultation on the Nursing Associate role.

The consultation attracted more than 1,000 responses from individuals including patients, members of the public and a wide range of organisations including professional bodies, trade unions, health care and social care providers and commissioners of healthcare. The role will be given the title Nursing Associate. In order to get the implementation of the Nursing Associate role right, HEE intends to appoint ‘test sites’. Five workshops will take place in England in July so that HEE can engage with stakeholders on the scope of practice of the new role. Early test sites will recruit 1,000 students to start training for the new role in 2017.

To view the response to the consultation, visit https://hee.nhs.uk/our-work/developing-our-workforce/nursing/new-support-role-nursing

Join Lisa Bayliss-Pratt, HEE’s Nursing Director, for a Twitter chat on the @WeNurses platform on Tuesday 7 June (8-9pm) to debate areas of the consultation and ask questions.

Barbara A. Jack, Tracy K. Mitchell, Louise C. Cope & Mary R. O’Brien have written this interesting article entitled:

“ Supporting older people with cancer and life-limiting conditions dying at home: a qualitative study of patient and family caregiver experiences of Hospice at Home care ”

Download the document below:

Jack et al 2016 – Journal of Advanced Nursing

The NAHH is delighted to have received some highly positive feedback from two member services about the benefits and impacts the Association provides for them.

Please do read these on the dedicated Testimonials page →.

The NAHH Trustees encourage and welcome feedback so please do get in touch if you wish to share anything with us.

“St Luke’s Hospice in Sheffield use some of the OACC outcome measures to inform our clinical services. We have over the last two years embedded these measures in to clinical working practices across the Hospice inpatient, community and day services. In this time we have seen the real difference this has made to patients and their families and we received a letter recently from a bereaved relative asking for a blank copy of their ipos so she could share it with friends and family and thanking us for allowing her and her husband to have the opportunity to complete this as it meant that she and he both knew that what was important to them mattered to us.

The use of the measures have also provided us with a more robust governance framework and reporting structures, improved MDT working with a framework enhancing equality of access to care based on need.

Whilst the time and commitment required to embed these outcome measures in practice is considerable and should not be underestimated the gains for patients and the organisation make this worthwhile.”

– Judith Park, Deputy Chief Executive from St Lukes Hospice in Sheffield

You can now donate to NAHH online via YouCaring. YouCaring is a free crowdfunding website for personal and charitable causes.

Make a donation on YouCaring →

Rosalind Matty, one of the founding members of the National Association for Hospice at Home, has produced this interesting history of how the association began.

Download the document below:

Rosalind Matty – The Birth of the National Forum for Hospice at Home

Sue Ryder – Leckhampton Court Hospice in Gloucestershire is delighted to announce its Hospice at Home Manager, Heather Mitchell, has joined the National Association for Hospice at Home (NAHH) as a Trustee.

Read the article on Sue Ryder here →