This is a relevant and interesting article for all Hospice at Home services who are reviewing and extending their services. The research confirms that the demand for Hospice at Home services continues to grow and is unable to meet that demand in some areas. The focus is still dominated by cancer referrals and more affluent areas. Accessing ethnic minority populations and rural areas remains a challenge and are under-represented in most areas. The article is a reminder that, although H@H services have facilitated the need for services to allow people to die at home, they still have much to do to enable equity of access to their services.
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What do patients and family-caregivers value from hospice care? A systematic mixed studies review.
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Two thirds of nurses struggle to provide good care to dying patients due to staff shortages
There is up to date research article on how nurses struggle to give good care to dying patients due to staff shortages and find not only the physical constraints but the emotional responsibility to care for the patient and the family is extremely challenging.
We all like to think we can give the precious gift of time but in reality there many barriers that prevent us from doing so and staff shortages is one of them.
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This article highlights the importance of maintain identities for patients with dementia through clothing and accessories – in particular the importance of a handbag!
Handbags hold all sorts of important items that can stimulate memories and help patients to maintain their dignity through providing them with a focus or a reminder when they are struggling.
Click here to view Handbags and glad rags: preserving identity in dementia.
This article is from the King's Fund that helped to explain how Primary Care Networks (PCNs) may/will work ovber the next few years.
Advance care planning is encouraged to ensure patient choice and person centred care. It is often those caring for patients at home that are faced with discussing difficult and sometimes frightening conversations for patients.
This article , Advance Care Planning in general practice – does policy match reality? Are findings from a freedom of Information request by Compassion in Dying to Clinical commissioning groups, and explores how patients often reflect that GPs and other health care professionals are reluctant to discuss and record advance wishes.
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Mobile Health Technology and Home Hospice Care: Promise and Pitfalls
Phongtankuel V, Adelman RD, Reid MC.
Prog Palliat Care. 2018;26(3):137-141. doi: 10.1080/09699260.2018.1467109. Epub 2018 Apr 26.
Mobile smart phone technology is an area where there has been rapid growth and where technology has enabled smarter processes and care to go further.
This article outlines the pros and cons of incorporating technology into existing Hospice at Home Services.
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Commissioning of Specialist Palliative Care Services in England
Lancaster H, Finlay I, Downman M, Dumas J.
BMJ Support Palliat Care. 2018 Mar;8(1):93-101. doi: 10.1136/bmjspcare-2016-001119. Epub 2017 Feb 28.
This article looks at the disparity between CCGs across England – with allocated budget for EOLC ranging from £52 to £2300 per patient per annum.
This highlights the need for EOLC services to be specific about the cost of caring for a patient when discussing resource with CCGs. Although collation of the data takes time, it would be time well spent in the longer term, if it means that CCGs recognised the cost savings by keeping patients out of acute services.
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