Major step forward for dying people as UK Government pledges to change benefit system for terminally ill.
Marie Curie and the Motor Neurone Disease Association respond to the news that the Department for Work and Pensions (DWP) has announced it will reform the benefits system for terminally ill people.
Terminally ill people and campaigners are welcoming a ‘significant step forward for compassion and common sense’ today after the UK Government made a long-awaited announcement that it would change the benefit system for the terminally ill.
In response to the ‘Scrap 6 Months’ campaign led by charities Marie Curie and the Motor Neurone Disease Association, the UK Government has pledged to make it easier for people with a terminal illness to get fast-track access to financial support.
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Butterflies releases at Princess Alice Hospice.
The family of a patient at Princess Alice Hospice gathered together in the early June sunshine to release some beautiful butterflies into the grounds of the Hospice in Esher.
Sue, who has been receiving palliative care at the Hospice, was keen to release the butterflies herself as she had reared them from eggs. Sue’s husband arranged to transport the butterflies and Hospice staff organised for Sue’s bed to be moved out onto the terrace so that she could be part of the release. Sue wanted her grandson present so he could see them fly off and the whole family was involved.
Planning for a good death” event session for Dying Matters Awareness Week on Monday 10th May 2021 run by NHS Gloucestershire Clincal Commissionioning Group and Gloucestershire County Council. If you could not make the session then you can view the recording here.
Additionally, to help shape and improve palliative and end of life care services in the future, including bereavement services, we encourage your feedback via this short survey: click here. This survey is for anyone - we would like to ask staff to complete the survey personally, but to also share it (where/when appropriate) with the people that they are supporting. The survey gives people the opportunity to share their views on end of life care planning, as well as any recent experiences they may have of a family member or person they cared for receiving end of life care.
The Albert Hunt Trust is welcoming applications from organisations that provide end of life palliative care and support. Charities registered with the Charity Commission can apply for grants of up to £10,000. The online application process can be accessed via the website: www.alberthunttrust.org.uk. For further information please refer to the website or contact Jane Deller Ray on 0330 113 7280.
Often challenging but ultimately rewarding; a career in hospice care offers the opportunity to be part of a multi-professional team and provide truly holistic care in a supportive environment. See the video published by Hospice UK on working in hospice care here.
Our definition of hospice care. Every hospicde across the UK was funded to respond to the needs of the community it serves, and continues to develop in order to meet these changin needs.
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On the fronline 'My role can be very sad, but this is where I belong' What it is really like to work on the frontline in a hospice during Covid19. Staff at St Luke's Plymouth have written a piece for ehospice News about the reality.
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What is the right approach in end of life care and why is it important?
Read The important of human rights in end of life - ehospice here
Talking about dying isn't easy, but it matter. During this challenging year, it is important to talk about death, dying and bereavement, it is why @DyingMatter is SO important. View the Dymatter website for their latest news and resources here
The ENDEMIC (dEmeNtia and DEcision MakIng during Covid19) research team at UCL, who have developed a guide to help carers of people with dementia who have COVID-19 to make decisions about care for their loved ones.
Development of the guide has been supported by Marie Curie, Alzheimer’s Society and Dementia UK. It is a free downloadable document (available here) that helps carers work through situations, medical and legal jargon so they can make informed decisions quickly under stressful circumstances. The press release can be seen here.
The pandemic has led to a strange paradox- on the one hand encouraging conversations on otherwise taboo subjects of death and dying while on the other hand, people who have lost someone to a cause other than the virus feel left out.
I have just read this very interesting and thought provoking article written by Beth French who has created a support network for people aged 18-35 who are bereaved. She has considered many aspects of loss and grief within this demographic who are maybe missing out on much needed support. Maybe you know someone who would benefit from her experience.
View the full article here
And the people stayed home. And read books, and listened, and rested and exercised, and made art, and played games, and learned new ways of being, and were still. And listened more deeply. Some meditated, some prayed, some danced. Some met their shadows. And the people began to think differently.
And the people healed. And, in the absence of people living in ignorant, dangerous, mindless, and heartless ways, the earth began to heal.
And when the danger passed, and the people joined together again, they grieved their losses, and made new choices, and dreamed new images, and created new ways to live and heal the earth fully, as they had been healed.
Submitted by NAHH Trustee, Sally Taylor
At this exceptional time in the NHS, H@H carers will be caring for more patients and carers after a death has occurred. Many H@H carers are skilled and trained for this but there are others who are less experienced. This article is a guide to best practice at this time and can act as a check list that all is being done at this difficult time.
In these unprecedented times it is not only our physical health and wellbeing that will be challenged but our emotional one too.
This was on a Palliative Care site and was sent to me from a colleague. I thought how poignant it was. We are very generous with our emotional support but what happens when the fuel tank is showing nearly empty and onto the red. We can only be of help and support to others if we “care” for ourselves too. I am in no doubt that we are all feeling for each other now and in the future
Stay safe my friends across the country. Sally Taylor, Trustee and Vice Chair.”
Caring for those at end of life can cause stress to staff. This article offers discussion and support to nurses working alongside the dying within hospitals. Although hospital based, this will resonant with staff working in any area of end of life care. There are many points in this article that will create discussion and it also offers reflective exercises to enhance wellbeing.
Stumbling Towards Death: How do Canadians Die? Often not how or where they want
Author Jim Oldfield
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